We moved to Bay 4 today!!! I'm so excited because this room feels more homey. It has a couch that pulls out so you can sleep over, a TV, a bathroom with a shower, a recliner, wood cabinetry and a door that you can actually close so it is not so noisy! The whole idea now is that they want me to room in a much as possible so that way he can depend on me as his source of food and not on the bolus feedings through his NG. His breastfeeding is getting much better and he hasn't needed a bolus any time that I have nursed him since yesterday before noon. They also increased his bolus feedings to 55ml every 3 hours when he is not being breastfed since he didn't gain any weight over night.
Today they also put him on a regular nasal cannula and not a high flow as he was on so that means that the oxygen has less pressure going through his nose. The oxygen liter is still at 1 liter. No change with his morphine today.
The nurse I had today in Bay 2 told me that when he is breastfeeding 80% of the time then he can be on an on demand schedule with feeds and have the NG pulled instead of getting bolus fed every 3 hours. That means that I need to be feeding him at least 6-7 times out of the 8 times he eats a day. Wow, time for me to really be a mom and be his caregiver. I also think that my child poops more than any other baby. I'm being serious too - you change one diaper then he soils another right after that. He had 14 poops yesterday!! The nurse practioner told me that the loose, frequent stools can be attributed to the morphine withdrawal though. Another plus to getting off the morphine. The doctor we had this morning told us that he will probably have to go home on oxygen for a few weeks to months because it may take that long for his pulmonary hypertension to get better and the extra oxygen would be benefical while he's still fighting the disease. He can also go home on the oral morphine, so now we're just waiting for him to eat and gain weight. The doctor gave us less than 2 weeks to be here, I'm hoping for around a week but we're not rushing anything, I'm just ready to be home and get settled in with Oliver. And since I have the cutest baby in the world, here's a picture of my sleeping angel after the big trip to Bay 4.
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