10-8-10

Well we got Oliver's hemaglobin checked yesterday and it came back lower at 6.9. So, after talking with one of the residents down in Iowa City we came to the conclusion that we should move up the date of his bone marrow biopsy and aspirate to this coming Monday the 11th instead of waiting until the 18th. It is a mix of emotions Shawn and I are feeling. We want him to have the procedure so we figure out what is going on and how to treat it, but we're scared for him and scared about the outcome as well. The doctors haven't really told us yet what it could be and what the treatment plan is so hopefully we'll come away with answers on Monday to all of our questions.

You can really tell now that his hemaglobin is low because he is exhibiting the signs of it being low that they told me to watch for. It is crazy how much adults and babies are different in they way they show the signs of anemia. Adults are usually tired and weak and Oliver is anything but that. Today alone he was awake for 6.25 hours straight and was very fussy unless he was held and rocked. Good thing it is nice out and we can go on walks to help calm him down although it is very buggy. At night he isn't sleeping the 3-5 hours as before we're lucky if he goes 2 hours straight before waking up but at least he goes right back to sleep once you satisfy his needs. He's still eating like crazy and gaining weight and peeing and pooping fine. His color is a little more pale but hopefully this will all resolve once he has more hemaglobin either by transfusion of blood or by others means.

Keep praying for little Oliver so that he can fight this as well and prevail. We're taking it day by day and hoping the Monday will give us come clarity so we know what we're up against and how to fight it. Thank you to everyone who keeps praying for us and keeping us in your thoughts, it means the world to us and we know the power of prayer works. It helped Oliver though the pulmonary hypertension and getting through the morhpine withdrawal and off the oxygen so that he could come home and we know it will help with this too.